Canavan Research Illinois

Canavan Research Illinois is a nonprofit corporation dedicated to saving the lives of children battling Canavan disease.

A 501 (c) (3) charity established in April of 2000, Canavan Research Illinois is a 100% volunteer organization meeting the critical need to support medical research to treat, cure and improve the quality of lives of all children battling Canavan disease.

As an orphan disease, Canavan receives essentially no public funding for research. It is our mission to raise funds to support cutting-edge research, increase public awareness and network Canavan families.

Virtually every penny raised is dedicated to saving all the young victims of Canavan disease.

Our organization has already directed over a half-a-million dollars towards medical research aimed at improving the lives of all children living with Canavan disease.

Due in part to our continuing efforts to find a cure for Canavan Disease, 7 more children received gene replacement therapy between May and August of this year.

Precious Max, was treated over two years ago and continues to amaze everyone he encounters.